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Your Name Is Brett

I know that you don't know 

What this poem is about

Your name is Brett

And I love you without a doubt

 

Even when you throw your food

on the ground

And when you get excited

And flap your arms around

 

Even when you pull my hair

"Ouch that hurts!"

And crawl around and

look up skirts

 

Even when you kick me and laugh

Because you think it's funny

And when you get that evil grin

And I know that you're not as sweet as honey

 

Even when you close your mouth as tight as you can

When you see your medicine coming

You can't talk

All you're doing is humming

 

Even when I call Grandma and Grandpa

With tears in my eyes and frustration in my voice

And they say be strong and brave

Because you have no choice

 

Even when we take you to therapy

And you still can't walk

And they tell me

You never will talk

 

Even when you are having a seizure

And turning blue

I feel so helpless

I don't know what to do

 

You look at me with those big blue eyes

And a wide smile that won't quit

I guess I won't get mad

Or have a major fit

 

You have Angelman Syndrome

So you life is such

Your name is Brett

And I love you very much

 

Written by Brett's Mom, Brandy Lochrie

 

 

Learn more about Angelman Syndrome

 

View Through Our Eyes

Parents share their heartfelt experiences.

Click for more stories

 

 
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