Meet the PHPF Family

 

Kelly Roberts

Board Member

Hi there, my name is Kelly Roberts and I am married to a wonderful guy, Steve Roberts, and I am the very proud mother of Abby, who has Smith-Lemli-Opitz Syndrome (SLOS). I am a native Ocalan (LWHS class of 1990!) and I am a Cardiovascular Technologist. I currently work for Life Line Screening as a Vascular Sonographer. 

My daughter, Abby, attends Maplewood Elementary's ESE program and I try to stay involved with her education and daily therapies. I am a member of the school PTO, and I am actively involved with the national support group for Smith-Lemli-Opitz Syndrome, called the "Advocacy and Exchange." Abby and I also participate in the federal study protocol for SLOS in  Washington , DC , and we visit there regularly.

I have a good understanding of various medical conditions and treatments, and enjoy helping to educate and empower other parents of disabled children. If I do not know the answer to a question, I enjoy networking with other parents and professionals who will seek out the answers and work together to find a solution. Please feel free to contact me, I love talking to people!

To contact me just click below

 

 

 

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